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A Thanksgiving Wish…
November 24, 2009 in Adolescent Anorexia Nervosa, Anorexia Nervosa, Binge Eating Disorder, blog, Body Acceptance, Bulimia Nervosa, COE (Compulsive Over-Eating), Dieting Behaviors, Eating Disorder Advocacy, ED Hope & Recovery, Empowered Familes, Family & Traditions, Thanksgiving | Tags: Adolescent Anorexia Nervosa, Adolescent Eating Disorders and Recovery Stories, anorexia, BED, Bulimia, COE (Compulsive Over-Eating), Eating Disorder Advocacy, Eating Disorder Recovery, EDNOS, Family & Culture, Life, Poetry, Thanksgiving Musings | Leave a comment
Post Equinox Ruminations
September 30, 2008 in Access to Eating Disorder Treatment, Access to ED Care/Treatment, Anorexia Nervosa, BANA, BEDA, Binge Eating Disorder (BED), blog, Body Acceptance, Bulimia Nervosa, Carer Support/Healing, COE (Compulsive Over-Eating), Community Health Education, Disordered Eating Behaviors, DSM-IV Criteria for ED's, DSM-V and Expanded ED Criteria, Eating Disorder Advocacy, Eating Disorders, EDNOS, Empowered Families, Engaged Families, Evidence Based Treatment for Eating Disorders, Family & Traditions, Family Meals, Global Community, Health & Wellbeing, Healthy Communities, Hope & Recovery for ED's, Ontario ED Treatment Services, Parent Activism and Eating Disorders, Public Education of ED's | Tags: Anorexia Nervosa, Autumnal Equinox, BANA, BEDA, Binge Eating Disorder Research, Bulimia Nervosa, Eating Disorder Advocacy, Eating Disorders, EDNOS, Empowered Consumers, Empowered Parents/Families, Fall Harvest, Mabon, Poetry & Healing, Seasonal Tradtions, Sophie Gregoire-Trudeau | Leave a comment
I love fall!
I love our annual trip to the apple farm, the continued but slowing scramble to farmer’s markets until they close shop next month, the cool nights and the warmth of a wood-fed fire pit surrounded by the deep and intoxicating smells that this season brings along with it. The cornstalks soon to be put out along with the vibrantly hued pumpkins, the trees’ deciduous leaves now changing in accord… it’s a sensory orgasm!
Last week seemed a bit more hectic, balancing home, family and a personal work-life in conjunction with extended family and friends for our annual Late Summer-Fall Equinox potluck. But all the work and preparations reminded me how vital it is reconnecting with others whose lives are busy like ours, whose children are growing and/or grown, and gather for one evening to celebrate the change of season, share a bountiful meal, taste new creations, revisit old favorites and maintain some deeper meaning within our lives.
A couple of weeks ago I was inspired to see BANA (Bulimia Anorexia Nervosa Association) holding it’s Global Dinner Table Conference (wonderful titled theme!) and extending efforts to educate and connect within the Ontario region with spokeswoman, advocate and eTalk journalist Ms Sophie Gregoire-Trudeau presenting a powerful personal journey through recovery from bulimia. Now as a healthy mother, wife and proponent for eating disorders she stated quite beautifully: “healing means reconstructing your notion of self, and who you are, and your connection with the world”.
BANA is one of a handful of grassroots organizations that actually carries out valuable, useful support and services instead of only allocating funds-donations and collecting data, along with having a vital partnership with the Local Health Integration Networks (LHINs) that is broadly interconnected with hospitals, medical communities, local demographics, schools and universities to align more effectively with clinicians and the broader public to reach those in need and provide support for families.
Another organization of note that has recently joined earlier this month at the “global table” is BEDA (Binge Eating Disorder Association) which can be additionally pivotal towards connecting those whose diagnosis is either “undefined” “unspecified” or completely overlooked towards the resources they need, and continue providing the educational and preventative services as well as highlighting probably the most common form of eating disorder more broadly present.
It’s aspiring to see such organizations take root and develop, gathering together as a unified front to fight an illness that has left far too many for too long uninvited or unheard to now join at “the global table” to come together!
Recovery of a Different Order
May 15, 2008 in Anicca-Impermanence, Avalokitesvara, Blogs, Bodhissattva, Buddhism, China, Chinese Buddhism, Chinese Taoism, Chogyam Trungpa Rinpoche, Culture, Divine Meditation & Healing, Divine Meditation and Healing, Dogen Zenji, Earthquake in China, Earthquake Recovery, Emotional Healing, Engaged Families, Family & Culture, Global Crisis, Goddess of Mercy, Government, Healing Through Meditation, Healing through Ritual, Health, Health & Wellbeing, Kuan Yin, Kuan Yin's Veneration, Life & Death, Malnutrition and the Modern World, Natural Disasters, news, Non-Self, Prayers & Thoughts, Relief Efforts for Chinese Earthquake Victims, Samantabhadra, Sichuan Province/Earthquake Victims, Sogyal Rinpoche Teachings, Spirituality, Tibetan Masters, United Efforts/Relief Campaigns, World News | Tags: Activism & Eating Disorders, Adolescent Anorexia Nervosa and Family-Based Therapy, Anicca-Impermanence, Anorexia Nervosa, Avalokitesvara, Bodhissattva, Bulimia, Bulimia Nervosa, China, Chinese Buddhism, Chinese Taoism, COE (Compulsive Over-Eating), Divine Meditation & Healing, Dogen Zenji, Earthquake in China, Earthquake Recovery, Eating Disorder Advocacy, Eating Disorder Hope & Recovery, Eating Disorder Recovery, Eating Disorders, EDNOS, Engaged Families & ED's, Engaged Parents & Eating Disorders, Family & Culture, Global Crisis, Goddess of Mercy, Healing through Ritual, Health & Wellbeing, Kuan Yin's Veneration, Life & Death, Malnutrition in a Modern World, Natural Disasters, news, Non-Self, Parent Advocates & Eating Disorders, Prayers & Thoughts, Relief Efforts for Chinese Earthquake Victims, Samantabhadra, Sichuan Province/Earthquake Victims, Sogyal Rinpoche, Spirituality, Tibetan Masters, United Efforts/Relief Campaigns, World News | Leave a comment
By now everyone has read and seen the devastation caused by the earthquake measuring a magnitude of 7.9 in the Sichuan province of China. We have been holding our breath these past couple of days since dear friends of ours were living and working in China but were extremely fortunate and arrived saftely back home in India.
Many, many others are yet to be accounted for, and have not been left untouched by this horrific natural disaster– something of this extent not witnessed in over thirty years.
There are several relief organizations scrambling to help those who have been affected by this catastrophe, though what’s growing increasingly frustrating is how the local government is really making things difficult for aid-workers to get through and deliver assistance ASAP.
We continue to send our deepest sympathies and heartfelt condolences to all those affected by this tragic event.
-shanti
“This day is a special day, it is yours
Yesterday slipped away, it cannot be filled anymore with meaning
About tomorrow nothing is known.
But this day, today, is yours, make use of it.
Today you can make someone happy.
Today you can help another,
This day is a special day, it is yours.
-INDIAN POEM-
EDC Lobby Day 2008
April 11, 2008 in Access to ED Care/Treatment, Accurate Information Campaigns in ED's, anorexia, Anorexia Nervosa, Bulimia, Bulimia Nervosa, Carer Support, COE (Compulsive Over-Eating), Community Health Education, Consumer Alert, Culture, Eating Disorder Advocacy, Eating Disorder Coalition, Eating Disorder News, Eating Disorder Research, Eating Disorder Treatment, Eating Disorders, Eating Disorders and Mental Health, ED advocacy, ED Coalition, ED Hope & Recovery, ED recovery, EDC Lobby Day 2008, EDNOS, eliminating stigma, Empowered Families, Empowered Parents, Engaged Families, Evidence Based Treatment for Eating Disorders, Evidence-Based Medicine, F.R.E.E.D. Foundation, family, Family & Culture, Family & Friends Network (PFN), Family Education/Resources, Family supported ED treatment, Family-Based Therapy and Eating Disorders, Government, Health, Health & Wellbeing, Health Care, Hope & Recovery for ED's, Human Rights, Improvement of Psychological and Behavioral Treatments, Insurance Disparity, Mental Health, Mental Health Discrimination, Mental Health Parity, Neurobiology of Treating Eating Disorders, news, Parent Activism and Eating Disorders, Parent Advocates, Parent Support, Parent/Family Support and Eating Disorders, Paul Wellstone Mental Health & Addict Equity Act, Personal, Personal Empowerment, Personal Stories, Policy & Action, Policy Analysis, PSA's, Public Education of ED's, Public Health, Public Policy, Public Support for Parity, Research and Recovery | Tags: Access to ED Treatment, Access to Mental Health Care/Eating Disorders, anorexia, Anorexia Nervosa, Bulimia, Bulimia Nervosa, Carer Support and Eating Disorders, COE (Compulsive Over-Eating), Eating Disorded, Eating Disorder News, Eating Disorders and Mental Health, Eating Disorders Coaltion, ED Hope & Recovery, ED Treatment, EDC Lobby Day 2008, EDNOS, Eliminating Stigma with Eating Disorders, Empowered Families/Parents and Eating Disorders, Evidence Based Treatment for Eating Disorders, F.R.E.E.D. Foundation, Government, Health Care, Health Insurance Discrimination, Health Insurance Reimbursement for ED's, Insurance Disparity and Eating Disorders, Legislation for ED Advocacy and Education, Parents with Eating Disordered Children, Policy & Action, PSA's, Public Health, Public Support for Parity, Support to further ED Research | 1 comment
Some incredible individuals and parent advocates have been hard at work the past two days in Washington working with legislators on Capital Hill for the annual Eating Disorders Coalition Lobby Day to push forth further measures and legislation in the continuation to further progress within treatment, research, prevention and education of eating disorders.
This is vital and necessary work. I for one am so very grateful, since I was not able to attend, for all of these individuals who have committed themselves towards improving the lives of those affected by this devastating illness and the families that are doing so much of this work solo, without much support, treatment resources, and clinicians adequately trained to best help their loves ones.
Thank you EDC and its sponsors, Ms Laura Collins— you are the best!
: America The Beautiful :
April 9, 2008 in America The Beautiful, anorexia, Anorexia Nervosa, Behavioral Health, Bodies and Film, Body Acceptance, Body Image & Film, Chicago Film Makers, Chicago Films, COE (Compulsive Over-Eating), Community Health Education, Constructs of Pyschological Distress, Culture, Darryl Roberts, Disordered Eating Behaviors, Eating Disorder Advocacy, Eating Disorder News, Eating Disorders, Eating Disorders and Mental Health, Eating Patterns and Weight Related Issues, ED Hope & Recovery, ED recovery, EDNOS, eliminating stigma, Empowered Families, Empowered Parents, Environmental factores influencing ED's, Family & Culture, Family Education/Resources, Film & Society, Film and Critique/Review, Film Documentary, Film Genres, Health & Wellbeing, Improvement of Psychological and Behavioral Treatments, Mental Health, news, Parent Activism and Eating Disorders, Parent Support, Parent/Family Support and Eating Disorders, Personal, Personal Empowerment, Personal Stories, Public Health, Self-Help Narratives, Society and Weight Related Issues, Sociocultural Factors in Eating Disorders, Symbolic Imagery, Thoughts | Tags: America The Beautiful, anorexia, Anorexia Nervosa, Behavioral Health, Bodies & Film, Body Acceptance, body image, Body Image & Film, Bulimia, Bulimia Nervosa, Chicago Film Makers, Chicago Films, COE (Compulsive Over-Eating), Collective Discussion of Film and Weight Related Issues, Community Events, Community Health Education, Constructs of Pychological Stress, Darryl Roberts, Eating Disorder Advocacy, Eating Disorder Recovery, Eating Disorders, EDNOS, Film and Critique/Review, Film Documentary, Film Genres, Health Issues, IAEDP, Mental Health, news, Obsessive Preoccupation with Weight, Parent Advocates, Parent Support/Education and ED's, Personal, Personal Empowerment, Sociocultural Factors in Eating Disorders, Thoughts, Weight & Stereotypes, Weight Issues and Film Documentaries | Leave a comment
Oh yeah! May 9th (or from what others have been stating but I haven’t found listed: April 25th) heading to the ‘Windy City’- Chicago to check out this city’s native film-maker, Darryl Roberts documentary that has gotten plenty of accolades; and additional kudos from those who attended last week’s IAEDP conference.
It’s interesting that within the past year two male film-makers (perhaps more– feel free to share if you know) the other is Glenn Gers and his film: Disfigured (which a Cali friend of mine got to see during the film festival and loved) have dared to dig deeper into our culture’s preoccupations within this topic– I say it’s bloody fantastic and about time!
Join the caravan if you are able.
ciao-
Life as it is…
April 5, 2008 in Access to ED Care/Treatment, anorexia, Anorexia Nervosa, Behavioral Health, Books, Buddhism, Bulimia, Bulimia Nervosa, Carer Support, Chogyam Trungpa Rinpoche, COE (Compulsive Over-Eating), Constructs of Pyschological Distress, Culture, Disordered Eating Behaviors, Eating Disorder Advocacy, Eating Disorder Treatment, Eating Disorders, Eating Disorders and Mental Health, ED advocacy, ED Hope & Recovery, ED recovery, EDNOS, Emotional Healing, Emotional Journeys, Empowered Families, Empowered Parents, Engaged Families, Family & Culture, Family Based Therapy, Family supported ED treatment, Healing Through Meditation, Health, Health & Wellbeing, Health Care, Mental Health, Neuroscience and Eating Disorders, Parent Activism and Eating Disorders, Parent Advocates, Parent Support, Parent/Family Support and Eating Disorders, Personal, Personal Empowerment, Personal Narratives, Personal Stories, Psychology & Counseling, Research and Recovery, Self-Care, Self-Help Narratives, Spirituality, Symbolic Imagery, Tibetan Buddhism, Tibetan Vajrayana Master, Trungpa tulkus, Writing & Healing | Tags: Activism and Support for Eating Disorders, Anorexia Nervosa, Behavioral Health, Books, Buddhism, Buddhist Psychology, Bulimia Nervosa, Carer Support, Chogyam Trungpa Rinpoche, COE (Compulsive Over-Eating), Eating Disorder Recovery & Hope, Eating Disorder Support, Eating Disorders, ED advocacy, ED Recover, EDNOS, Emotional Healing, Empowered Parents, Engaged Families, Family & Culture, Family Based Threapy and Eatiing Disorders, Health, Health Care, Human Collectives, Humanity, Loving-Kindness, Meditation and Eating Disorders, Meditation Community, meditation practice & healing, Meditation studies and health research, Mental Health, Nalanda Arts Program, Parent advocacy and Eating Disorders, Parent Advocates, Parent Support and Eating Disorders, Parents with Eating Disordered Children, Personal, Personal Stories of Healing, Psychology&Healing, self-help, Shambhala, Spirituality&Healing, Symbolic Imagery and Healing, Therapeutic Healing Modalities for Eating Disorders, Tibetan Vajrayana Master, Trungpa tulkus | 1 comment
Facing the bluntness of reality is the highest form of
sanity and enlightened vision… Devotion proceeds
through various stages of unmasking until we reach
the point of seeing the world directly and simply
without imposing our fabrications… There may
be a sense of being lost or exposed, a sense of vulnerability.
That is simply a sign that ego is losing its grip
on its territory; it is not a threat.
-Chogyam Trungpa Rinpoche
: NEDAW 2008 :
February 28, 2008 in Access to ED Care/Treatment, Accurate Information Campaigns in ED's, anorexia, Anorexia Nervosa, Behavioral Health, Body Acceptance, Bulimia, Bulimia Nervosa, Carer Support, COE (Compulsive Over-Eating), Community Health Education, Eating Disorder Advocacy, Eating Disorder News, Eating Disorder Treatment, Eating Disorders, ED advocacy, ED Hope & Recovery, ED recovery, EDNOS, eliminating stigma, Empowered Families, Empowered Parents, Engaged Families, Erase Stigma of Anorexia, Family Education/Resources, Health, Health Care, Hope & Recovery for ED's, Improvement of Psychological and Behavioral Treatments, Insurance Coverage and ED's, Mental Health, Mental Health Parity, National Eating Disorders Association, NEDAW 2008, Parent Activism and Eating Disorders, Parent Advocates, Personal Empowerment, Public Education of ED's, Residential ED Treatment Centers | Tags: anorexia, Anorexia Nervosa, Body Acceptance, body image, Body Image and NEDAW, Bulimia, Bulimia Nervosa, COE, Community Events, Community Health Education, Eating Disorder Advocacy, eating disorder myths and misconceptions, Eating Disorders, EDNOS, Embrace Your Genes, Empowered Families/Parents and Eating Disorders, Health, Health&Wellbeing, National Eating Disorders Association, NEDAW, news, Parent Activism and Eating Disorders, Parent Advocates for Education on Eating Disorders and, Personal Empowerment and Eating Disorder Recovery, Recovery and Hope for Eating Disorders, Support&Recovery | 2 comments
So many great happenings during National Eating Disorders Awareness Week 2008 – hope everyone is able to partake in some NEDAW events in your corresponding local areas. This year’s theme, much like last year’s, is still quite pivotal and we can all do our share to spread awareness, gently and compassionately encourage those who need support and treatment to take those vital initial steps with our love and backing.
Reach out, celebrate all our diverse shapes and sizes, EMBRACE each other, and share our stories- spread the word, be heard, dispel misconceptions and myths that still surround eating disorders and those that suffer- change can happen even with the simplest and smallest of steps!
Laura Collins, as always, an incredible inspiration, advocate, and Mom has posted some great commentary on the Congressional Briefing for the Eating Disorders Coalition with Dr Cynthia Bulik’s wisdom- Power to the People!
XO
: Tending and Befriending-Let the Cup Overflow :
February 14, 2008 in Adolescent Anorexia Nervosa, anorexia, Anorexia Nervosa, Art Psychotherapy, Artistic Therapy and Healing, Behaviora Strategies, Behavioral Health, Body Acceptance, Bulimia, Bulimia Nervosa, COE (Compulsive Over-Eating), Community Health Education, Culture, Eating Disorder Advocacy, Eating Disorder Treatment, Eating Disorders, ED advocacy, ED Hope & Recovery, ED recovery, EDNOS, Empowered Families, Empowered Parents, Evidence Based Treatment for Eating Disorders, family, Family & Friends Network (PFN), Family Based Therapy, Family supported ED treatment, Family-Based Therapy and Eating Disorders, FBT/Family-Based Therapy, Health, Health & Wellbeing, Health Care, Hope & Recovery for ED's, Improvement of Psychological and Behavioral Treatments, Journal writing and ED, Life, Love, Mental Health, Parent Support, Parent/Family Support and Eating Disorders, Personal Empowerment, Personal Stories, Poetry, Poetry/Literature, Relationships, Society, Sociocultural Factors in Eating Disorders, Thoughts, Valentine's Day, Women & Writing | Tags: Adolescent Eating Disorders and Recovery Stories, Anorexia Nervosa, Behavioral Health/Science, Body Acceptance, Bulima Nervosa, celebrated holiday's/traditions, COE, Culture, Eating Disorder Recovery/Support, Eating Disorders, EDNOS, Empowered Families, Empowerment and ED's, Erase Stigma and Eating Disorders, family, Health, Health and Wellbeing, Health Care, Life, Love, Mental Health, Personal Stories, Poetry, Recovery, Relationships, Self-Acceptance/Love, Sociocultural Factors in Eating Disorders, Thoughts, Valentine's Day, writing | 1 comment
It’s a day filled with LOVE–
Voltaire wrote: Love is a canvas furnished by Nature and embroidered by imagination which is such an eloquent phrase, and so affecting to me having a daughter who is courageously challenging her anorexia- and winning back (embroidering) her true self each day.
Those of us with a child, family member, and/or friend who are suffering with an eating disorder know we have to be both Head & Heart for our loved ones; it’s a duality that few seem to have the discernment and wisdom to forewarn us about on this journey to wholeness and health. Most in the medical community still keep us at arms-length when it comes to offering up the most humane, balanced and adequately researched strategies to implement within supporting our loved ones that emphasize such an expanded “imagination” or creativity that not only empowers the sufferer, but works towards healing the entire family/support network of the sufferer- metaphorically this would require the most sophisticated embroidery needle and elevated imagination that can stitch a warm, comforting Love quilt for anyone to find shelter, solace, comfort and wisdom (and most likely made with fleece).
I also think it’s imperative, absolutely crucial to Love thyself unconditionally, and that dear friends, includes the parents, the extended family members, friends, etc.- your entire collective clan, blood-linked and other surrogate compassionate souls- Tending & Befriending– embracing life as it stands, even making peace with pain, uncertainty and discomfort; all of which we most certainly are no stranger to.
So on this Valentine’s Day I wish for all of you to embrace yourselves, your loved ones with the deepest sense of honor, open-heartedness, self-acceptance and Love–
“You, yourself, as much as anybody in the entire universe, deserve your
love and affection.”
-Buddha
Joyeuse Saint-Valentin!
DSM in Need of Broadened ED Criteria
February 8, 2008 in Access to ED Care/Treatment, Adolescent Anorexia Nervosa, American Journal of Psychiatry, anorexia, Anorexia Nervosa, APA/NIH Conference Series, Behavioral Health, Biostatistics, Brown University, Bulimia, Bulimia Nervosa, COE (Compulsive Over-Eating), Community Health Education, Diagnostic Deficiencies Identified in DSM-IV, Dr Mark Zimmerman, DSM Definitions, DSM nomenclature, DSM-IV Criteria for Anorexia Nervosa, DSM-IV Criteria for ED's, DSM-V and Expanded ED Criteria, Eating Disorder Advocacy, Eating Disorder News, Eating Disorder Research, Eating Disorder Treatment, ED advocacy, ED Hope & Recovery, EDNOS, Empirical Research/Studies and ED's, Empowered Families, Empowered Parents, Evidence Based Treatment for Eating Disorders, Evidence-Based Medicine, Genetic Analysis and Eating Disorders, Health, Health & Wellbeing, Health Care, Improvement of Psychological and Behavioral Treatments, Mental Health, National Institutes of Health, news, Psychopharmacology, Research and Recovery, Rhode Island Hospital, Science | Tags: Access to Mental Health Care/Eating Disorders, Accurate Diagnosis of ED's, American Psychological Association, anorexia, APA/NIH Conference Series, Bio Med Psych, Brown University, Bulimia, Comprehensive Review, Diagnosis of Eating Disorders, Dr Mark Zimmerman, DSM-IV, DSM-IV nomenclature problems, Eating Disorders, EDNOS, Empirical Research for ED's, Health, Human Behavior, Improved ED Treatment/Care, Mental Illness, MIDAS-Methods to Improve Diagnostic Assessment and Serv, news, psychiatry, Research Agenda for DSM-V, Research/Studies, Rhode Island Hopsital | Leave a comment
Continued studies, most recently published by Dr Mark Zimmerman for Methods to Improve Diagnostic Assessment and Services (MIDAS), and additional colleagues of both Rhode Island Hospital and Brown University, indicate that the current DSM-IV lacks adequate “diagnostic criteria for eating disorders”, and that “researchers recommend a broadening of the criteria” since currently only anorexia and bulimia are “officially recognized and formally defined”.
Makes definite sense. Especially since DSM-IV was published back in 1994, and in reading the current DSM-V “white papers” , “DSM definitions are virtually devoid of biology, despite a large body of research that indicates a neurological basis for most mental disorders”. And that for over the past ten to fifteen years, there has been a steady increase of research and findings developed within eating disorders expanding beyond just AN and BN, but also EDNOS (Eating Disorder Not Otherwise Specified) which counts for “more than half of the patients in treatment centers”, as well as Binge Eating, COE (Compulsive Over-Eating), and other “subthreshold variants” that clearly expand the scope of eating disorder symptoms and diagnosis.
From what the DSM-V timeline indicates, this much needed and updated manual will be published sometime in 2011, which seems like an eternity for many of us already too familiar with the complexity of eating disorders and more often inadequate care/treatment of our loved ones.
So it’s encouraging to see the continued efforts and commitment of researchers and clinicians in the trenches (along with the rest of us!) collecting the data, and analyzing the results for peer review, publication, and improved teaching/training- which ultimately leads to better treatment and recovery options for those in need.
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