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Parents are a Resource– of Course!
May 22, 2008 in Access to ED Care/Treatment, Adolescent Anorexia Nervosa, anorexia, Anorexia Nervosa, Behavioral Health, Bulimia, Bulimia Nervosa, Carer Support, Chronicity of Eating Disorders, Disordered Eating Behaviors, Dr Daniel leGrange, Dr K.L. Loeb, DSM-IV Criteria for Anorexia Nervosa, Early Identification of Eating Disorders, Eating Disorder Hope & Recovery, Eating Disorder News, Eating Disorder Recovery, Eating Disorder Research, Eating Disorder Treatment, Eating Disorders, ED recovery, Empowered Families, Empowered Parents, Evidence Based Treatment for Eating Disorders, Family Based Therapy, FBT/Family-Based Therapy, Health & Wellbeing, Hope & Recovery for ED's, Medicine, Parent Activism and Eating Disorders, Parentectomy, Personal Stories, Psychopharmacology, University of Chicago ED treatment | Tags: Adolescent Anorexia Nervosa and Family-Based Therapy, Collaborative Treatment Models for Eating Disoders, Diagnostic Criteria for Adolescents and Eating Disorder, Dr Daniel le Grange, Dr K.L. Loeb, Eating Disorder Advocacy, Eating Disorder Research, Eating Disorder Treatment, Empowered Parents/Families, Evidence Based Treatment for Eating Disorders, Family Based Therapy, Family supported ED treatment, Family Supported ED Treatment/Recovery, The Victorian Centre of Excellence in Eating Disorders | Leave a comment
There are few individuals who truly rise to a level of integrity, experience, commitment and compassion when it comes to researching and treating eating disorders that I can honestly say are worthy of note, let alone far too few dedicated and wisely seasoned clinicians available for sufferers and families assisting and caring for loved ones to have equal and affordable access to. Dr Daniel le Grange at the University of Chicago is most certainly one of those individuals.
For parents who have younger children or adolescents suffering with an eating disorder you are probably already aware how vital early diagnosis and intervention are to restoring your child’s health. Many families and parents are unfortunately still treated as the “problem” or blamed/shamed into believing that they “caused” their child’s eating disorder, and sometimes, worse yet, doctors don’t even take seriously the early warning signs of eating disordered behaviors as well as weight loss in younger patients and dismiss the parents concerns despite the “highest concentration of most sufferers of Anorexia Nervosa being in the adolescent female population”– time is not on anyone’s side when you delay diagnosis and immediate treatment.
And treatment programs along with many clinicians still leave the family aside and ignored vs being utilized as a vital resource in assisiting and collaborating within helping their child recover, and working with as well as healing the entire family unit. This makes many of us parents quite irate since we know our children best and were the first to have noticed the drastic changes in our child’s behavior, took initiative in researching treatment options/providers, and then continue to take action, resources and advocate for our children while waiting for many in the medical community and insurance industry to finally wake up and begin implementing true evidence-based treatment strategies that work instead of constantly reinventing the wheel, over and over…
Parents, Families/Partners and Caregivers of Children and Adolescents suffering with this illness please take heart, find continued reassurance, and be re inspired by reading Dr le Grange and Dr Loeb’s Early Intervention in Eating Disorders as well as Dr le Grange’s Treatment Model for Eating Disorders in Children & Adolescents :
- Parents are a RESOURCE in helping the adolescent
- Most parents CAN help the adolescent
- Parents have SKILLS to bring to treatment
- Therapist leverages parental skills and relationships to bring about change
- FBT-Family Based Therapy is the only evidence-based treatment shown to be efficacious and cost effective
On the Centre for Excellence in Eating Disorders (CEED) website, where if you are an Australian native they are also providing FBT and eating disorder treatment study for families free for participants, which they did here in the states at the University of Chicago a few years back.
Some day Eating Disorder Treatment will be this good everywhere — until then, keep fighting the good fight and don’t give up!
-shanti
Subcutaneous… you are my Friend
May 10, 2008 in Adolescent Anorexia Nervosa, anorexia, Anorexia Nervosa, Anti- Diet Campaign, Behavioral Strategies and Eating Disorders, Blogs, Body Acceptance, Bulimia, Bulimia Nervosa, Carer Support, COE (Compulsive Over-Eating), Cognitive Processing and Effects of Dieting, Community Health Education, Diet Breaking, Dieting Behaviors, Dieting Industry, Disordered Eating Behaviors, Eating Disorder Advocacy, Eating Disorder Recovery, Eating Disorder Research, Eating Disorders, Eating Patterns and Weight Related Issues, ED Hope & Recovery, ED recovery, EDNOS, Empowered Families, Empowered Parents, Environmental factores influencing ED's, Evidence Based Treatment for Eating Disorders, Evidence-Based Medicine, Family & Culture, Genetic Analysis and Eating Disorders, Health, Health & Wellbeing, Imprinting and Addictive Processes, Love Your Body, meta-analysis, Mind & Body, Parent Activism and Eating Disorders, Parent Advocates, Personal, Personal Stories, Public Health, Research and Recovery, Size Accpetance, Size Esteem, Society and Weight Related Issues, Sociocultural Factors in Eating Disorders, Symbolic Imagery, Thoughts | Tags: BDD, Body Dysmorphic Disorder, Diets Don't Work, DNA & ED's, Eating Disorder Recovery/Support, Eating Disorder Research, Eating Patterns and Weight Related Issues, Effects of Dieting, environmental factors influencing ED's, Epigenetic Inheritance, Evolutionary Biology and our Bodies, Fat & Metabolism, Fat Acceptance, Genetic Analysis and Eating Disorders, Genetic and Environmental causes of ED's, Gentetic Analysis and Eating Disorders, Health & Wellbeing, Health at Every Size, Karolinski Institute and Obesity Study, Love Your Body, neo-Lamarckian Researchers, Parent Support and Eating Disorders, Pathophysiology of Eating Disorders, Size Acceptance, Sociocultural Factors in Eating Disorders, Weight and Self-Perception | Leave a comment
Most of us realize that we need “fat” not only in our diet, but within our bodies– I say most since when you have an eating disorder, know someone with an ED, or care for someone suffering with this illness, specifically anorexia nervosa, which is hallmarked by the intense fear of gaining weight, this is a very difficult truth to swallow as well as visually accept within ones’ physical body.
There are also some studies that suggest for some this “fear” can be a precusor to eating disorders among the array of environmental, behavioral influences as well as genetic and/or biochemical predeterminers that scientists are still compiling and discovering that can leave some individuals much more susceptible than others to either severe eating disordered behavior, EDNOS, or a severe diagnosed eating disorder that requires serious and comprehensive treatment.
What’s also intriguing is the work by researchers continuing to unfold in evolutionary biology, genetic imprinting, and epigenetic inheritance which I’m certain there are correlations within these findings and eating disorders that have yet to be fully available and utilized, but may be able to provide us with a much more inclusive picture behind the illness and how to improve prevention and treatment.
There was a recent study highlighting the benefits (mostly catching everyone’s eye with the glorification of our ever evolving rump, or as writer Debra Dikerson slammed in Salon.com last year about mainstreaming “Gi-normous butts”) of subcutaneous fat, which produces hormones known as adipokines found to boost metabolism (of course, I’m assuming this study will also fuel the weight-loss industry and war-on-obesity too) found in the booty area as well as belly and showing to be protective against type2 diabetes, but also reaffirming the adage that “diets don’t work” and briefly explains why this is part of the reason it’s difficult to keep that weight off once lost; and that our fat cells are set during adolescence and don’t decrease, but do actually expand in size.
And while I don’t embrace the the good/bad dichotomous thinking and categorization of really anything when it comes to our daily living and Life– you tend to find things more in shades of gray or muted with other colors vs just a pigment of one– the study is looking at two types of fat: subcutaneous and visceral , and where they are found within the body. Subcutaneous tends to be in the booty and stomach area, and has more benefits vs visceral, which tends to be the gunk blocking arteries, causing damage to organs– sorry to say you’re bad visceral, or maybe scientists just haven’t fully found out what you’re doing and why you are getting such a bad wrap.
Another study that continues in similar dialogue and highlights the complications of metabolic syndrome and that this can be triggered by overeating, which is correlated with weight gain, especially if done consecutively over a sustained period of time, and makes me wonder about endocannabinoids and their role cause/effect in obesity and how this, if at all correlates. The study also points to our fat cells being set during adolescence, but Dr Stephen O’Rahilly of Cambridge remains unconvinced, and isn’t prescribing to this determination just yet.
Maybe another more basic message to keep at forefront is that it’s not nice to fool with Mother Nature– she rises up with a vengeance. Our bodies have evolved over time and there is inherit wisdom to what we carry around with us everyday.
-Love Thyself
Nuggets Become Boulders for Change
January 16, 2008 in Access to ED Care/Treatment, Accurate Information Campaigns in ED's, Adolescent Eating Behaviors, American Journal of Psychiatry, anorexia, Anorexia Nervosa, Community Health Education, Dr Cynthia Bulik, Eating Disorder Advocacy, Eating Disorder Research, Eating Disorders, ED advocacy, ED Hope & Recovery, Erase Stigma of Anorexia, Evidence Based Treatment for Eating Disorders, Genetic and Environmental causes of ED's, Health, Health Care, Insurance Coverage and ED's, Insurance Disparity, International Journal of Eating Disorders, Mental Health, Neuroscience and Eating Disorders, news, Policy & Action, Questionnaire Studies/Data, Research and Recovery, Science, Sociocultural Factors in Eating Disorders, UNC study | Tags: Access to ED Treatment, biology, Blame-Based Stigma, Dr Cynthia Bulik, Eating Disorder Advocacy, Eating Disorder Research, ED Support, Environmental Factors in ED's, Erase Stigma of Anorexia, Evidence Based Treatment for Eating Disorders, genetic/biological components to ED's, Health Care, Insurance Coverage and ED's, International Journal of Eating Disorders, journalism, media, Mental Health, Michele A. Crisatulli, news, Questionnaire Studies/Data, research, Science, Sociocultural Factors in Eating Disorders, UNC study, UNC.edu, University of North Carolina Eating Disorders Program | Leave a comment
The news of UNC’s study has been bustling about, but it’s worth posting this fine gem of a quote from senior author and director of UNC’s Eating Disorders Program, Dr Cynthia Bulik: “even a nugget of accurate biological information can influence how health care professionals preceive the illness” -and similarly can change the perceptions of others as well.
Nuggets of Information- Boulders of Truth… “POW!”
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