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UCAN

 

I often, as many other parents of children suffering from an eating disorder, find myself envisioning what the future may hold for our daughter when she is older, well beyond the preparatory stages of ED recovery-maintenance, living a full, healthy and ED-free adult life will be like; especially when there may come a time when she decides upon a life-long partnership, marriage and/or family of her own.

Wouldn’t it be comforting and assuring to know that the care your son or daughter is receiving now will also be available for him/her and their partner-spouse when and if the time comes?

Thankfully some forward-thinking clinicians from the UNC Eating Disorders Program are working to provide just such a program, which is at this time addressing Anorexia Nervosa, and can continue to implement these necessary and supportive elements towards long-term health and maintenance for those who have loved ones suffering.

The UCAN Program

UCAN is a research program funded by the National Institute of Mental Health and is part of the UNC Eating Disorders Program. UCAN aims to help couples work together in the treatment of anorexia nervosa. Couples participate in UCAN over a period of six months and return for follow-up treatment three months after the end of the original six-month period. Your participation in UCAN can help you gain new confidence in facing anorexia as a team and can help us understand how best to involve partners in the treatment of eating disorders.
What Couples Can Expect
Treatment Team
Couples can expect that their treatment will be conducted by trained, licensed professionals from the UNC Eating Disorders Program who are experienced in the treatment of eating disorders.
Comprehensive Assessment
All participating couples have four assessments during which they complete questionnaires and interviews with a clinician, and are videotaped having a discussion with their partner about an anorexia nervosa-related topic.
Comprehensive Treatment
During their participation in UCAN, couples will be randomly assigned (like a coin flip) to receive 20 sessions of either:
• Couples Therapy
• Family Supportive Therapy
In addition, the patient also receives comprehensive treatment for anorexia nervosa from the UNC Eating Disorders Program at no additional cost, including:
• Individual Psychotherapy
• Psychiatry Consultations
• Nutritional Counseling

 

*For further information about registering for the program contact at: UCAN@unc.edu or phone: (919)966.3065

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St Paddy Day Yummies!

There’s a dear little plant that grows in our isle,
‘Twas St. Patrick himself sure that set it;
And the sun on his labour with pleasure did smile,
And with dew from his eye often wet it.
______________
It thrives through the bog,
through the brake,through the mireland;
And he called it the dear little shamrock of Ireland—
The sweet little shamrock,the dear little shamrock,
The sweet little, green little,shamrock of Ireland!
_____________________
Andrew CherryIrish Playwright (1762-1812)

Home

Mieluinen Koti- Armas Tytär
(Welcome Home Dear Daughter)

leaves

 

I have a group of friends, some of us have been buds since high school, that take an annual “getaway” to the Cape Cod of the Midwest and rekindle to a cabin, enjoy great food, great sights and wonderful memories. We are an eclectic bunch, love and support each other dearly, but most of us either live at opposite ends of the globe or within different states, have families, busy careers and do our best to stay in touch via email, phone and the annual escape.

When we discovered Kate Jacobs The Friday Night Knitting Club we began to loosely refer to our own “group” of eclectic Momma’s, hip-Sista’s, and cherished Friends within similar shadows cast in Jacobs endearing novel. Some of us do also knit, but my abilities at this craft (my Finnish G-Ma I know is grimacing down… all those beautiful scarves, legwarmers, mittens and sweaters to my clumsy and pathetic scraps of endlessly funny looking pot holders, both of my girls can also needle me to blushing embarrassment! What I yield with a paintbrush, quill and acrylics makes up for that I guess) are definitely comical.

Two years ago it was impossible to consider this pilgrimage with our daughter’s eating disorder diagnosis, and everything in our lives just seemed to stand still, as if one was holding in the deepest breath, waiting to exhale.

Next fall, we’ll be approaching three years in… deep exhalation; I take the moment to do something for myself, heck even have some fun!

And it was well worth it, and probably why my body is clearly present back here in the city, but my mind is still back in Door County, appreciating those gifts of friendship and remembering that caring for oneself is just as important as caring for others.

As parents, caregivers, extended family members, and partners who support and care for our loved ones recovering from an eating disorder, it doesn’t matter if you head for the woods or take a bubble-bath surrounded by candles and peaceful solitude, what does matter is that you remember to take the time to honor and care for yourself as well.

Simple yet so easy to forget… so please remember.

shanti

       … and how I feel about eating disorders, about the current state of our economy, the political scrapping and other such quibbles. Maybe it’s the post Harvest Moon which resembled the bounty and beauty of a big, bright pumpkin in all it’s glory bringing Ursa Major back down for Autumn hibernation and seasonal change. My ancestral forefather’s and mother’s deeply rooted with Finnic-myths describing the endeared Kontio – “dweller of the land”; such ancient stories recalling and reconnecting with one another.

 

*

*

Right now,

what she said,

what

I

said

is the size of a grizzly,

nine feet

tall

with stiletto claws swiping

at

my innards.

*

But

if

I

can

just inhale

and

back

slowly away,

time,

like a sailboat,

is waiting for tomorrow’s

wind

to sweep me

safely from this shore,

where

I

can stand on the deck,

day by day,

watching that grizzly shrink

smaller

and

smaller until it’s only

a

mouse,

easily

chased away.

 

*

*

Jacqueline Jules – The Argument

 

Juoksahkka, Maadteraahka I think of you!

… then shouldst have it for gingerbread*.   -William Shakespeare

      * Or in my case fresh carrot cupcakes

                                  _______________________________

Summer is winding down and it’s been a fantastic couple of months.  Gracious thanks to those of you who continued to email throughout the summer (for almost a month we were too deep in another world to even want access to the internet) with a wealth of supportive and heart-filled thoughts.  I was touched beyond words that can even begin to express my endless appreciation to you all.  And though I didn’t get a chance to respond to everyone in kind as of yet, I just wanted to share, once again how much this has meant to me and our family– merci!**

On another update-note, Drs Daniel le Grange and James Lock will be conducting a one and 1/2 day FBT-Maudsley training targeted towards adolescents with eating disorders in Portland, Maine: September 23-24th.  What a wonderful opportunity to continue to utilize family-based, supportive and evidence backed treatment practices that integrate all those involved within their loved ones’ care and recovery.  Mary Orear, executive director of Mainely Girls is sponsoring this event, for further information click on the highlighted link.

Hope all of you had a restful and recuperative Summer– and looking forward to reconnecting more regularly soon!

-shanti

 

With Dr Daniel leGrange taking his sabbatical in Australia there has been a hub of conference presentations and various skills-based workshops  and training for implementing the Maudsley Method into eating disorder treatment and care as well as informing and assisting families and caregivers of utilizing this Family-Based approach to help their loved one.

The collaboration and gathering of these individuals, families and professionals probably could not have arrived at a better time since Australia has recently been highlighting an increase of younger children diagnosed with anorexia

On a positive note, one Sydney mother describes their experience using the Maudsley Method for their adolescent daughter as valuable and further stated, “It’s not a quick fix. But we’re absolutely stronger as a family. We’ve always been strong.”

Go Maudsley!

 

             Interesting use of metaphor…

                       are you taking care of your Earth Suit— I hope so!

            – Bonne Nuit

 

There are few individuals who truly rise to a level of integrity, experience, commitment and compassion when it comes to researching and treating eating disorders that I can honestly say are worthy of note, let alone far too few dedicated and wisely seasoned clinicians available for sufferers and families assisting and caring for loved ones to have equal and affordable access to.   Dr Daniel le Grange at the University of Chicago is most certainly one of those individuals.

For parents who have younger children or adolescents suffering with an eating disorder you are probably already aware how vital early diagnosis and intervention are to restoring your child’s health.  Many families and parents are unfortunately still treated as the “problem” or blamed/shamed into believing that they “caused” their child’s eating disorder, and sometimes, worse yet, doctors don’t even take seriously the early warning signs of eating disordered behaviors as well as weight loss in younger patients and dismiss the parents concerns despite the “highest concentration of most sufferers of Anorexia Nervosa being in the adolescent female population”– time is not on anyone’s side when you delay diagnosis and immediate treatment.

And treatment programs along with many clinicians still leave the family aside and ignored vs being utilized as a vital resource in assisiting and collaborating within helping their child recover, and working with as well as healing the entire family unit.  This makes many of us parents quite irate since we know our children best and were the first to have noticed the drastic changes in our child’s behavior, took initiative in researching treatment options/providers, and then continue to take action, resources and advocate for our children while waiting for many in the medical community and insurance industry to finally wake up and begin implementing true evidence-based treatment strategies that work instead of constantly reinventing the wheel, over and over…

Parents, Families/Partners and Caregivers of Children and Adolescents suffering with this illness please take heart, find continued reassurance, and be re inspired by reading Dr le Grange and Dr Loeb’s Early Intervention in Eating Disorders as well as Dr le Grange’s Treatment Model for Eating Disorders in Children & Adolescents :

 

  • Parents are a RESOURCE in helping the adolescent
  • Most parents CAN help the adolescent
  • Parents have SKILLS to bring to treatment
  • Therapist leverages parental skills and relationships to bring about change
  • FBT-Family Based Therapy is the only evidence-based treatment shown to be efficacious and cost effective

 

On the Centre for Excellence in Eating Disorders (CEED) website, where if you are an Australian native they are also providing FBT and eating disorder treatment study for families free for participants, which they did here in the states at the University of Chicago a few years back.

Some day Eating Disorder Treatment will be this good everywhere — until then, keep fighting the good fight and don’t give up!

-shanti

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