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EDC Lobby Day 2008
April 11, 2008 in Access to ED Care/Treatment, Accurate Information Campaigns in ED's, anorexia, Anorexia Nervosa, Bulimia, Bulimia Nervosa, Carer Support, COE (Compulsive Over-Eating), Community Health Education, Consumer Alert, Culture, Eating Disorder Advocacy, Eating Disorder Coalition, Eating Disorder News, Eating Disorder Research, Eating Disorder Treatment, Eating Disorders, Eating Disorders and Mental Health, ED advocacy, ED Coalition, ED Hope & Recovery, ED recovery, EDC Lobby Day 2008, EDNOS, eliminating stigma, Empowered Families, Empowered Parents, Engaged Families, Evidence Based Treatment for Eating Disorders, Evidence-Based Medicine, F.R.E.E.D. Foundation, family, Family & Culture, Family & Friends Network (PFN), Family Education/Resources, Family supported ED treatment, Family-Based Therapy and Eating Disorders, Government, Health, Health & Wellbeing, Health Care, Hope & Recovery for ED's, Human Rights, Improvement of Psychological and Behavioral Treatments, Insurance Disparity, Mental Health, Mental Health Discrimination, Mental Health Parity, Neurobiology of Treating Eating Disorders, news, Parent Activism and Eating Disorders, Parent Advocates, Parent Support, Parent/Family Support and Eating Disorders, Paul Wellstone Mental Health & Addict Equity Act, Personal, Personal Empowerment, Personal Stories, Policy & Action, Policy Analysis, PSA's, Public Education of ED's, Public Health, Public Policy, Public Support for Parity, Research and Recovery | Tags: Access to ED Treatment, Access to Mental Health Care/Eating Disorders, anorexia, Anorexia Nervosa, Bulimia, Bulimia Nervosa, Carer Support and Eating Disorders, COE (Compulsive Over-Eating), Eating Disorded, Eating Disorder News, Eating Disorders and Mental Health, Eating Disorders Coaltion, ED Hope & Recovery, ED Treatment, EDC Lobby Day 2008, EDNOS, Eliminating Stigma with Eating Disorders, Empowered Families/Parents and Eating Disorders, Evidence Based Treatment for Eating Disorders, F.R.E.E.D. Foundation, Government, Health Care, Health Insurance Discrimination, Health Insurance Reimbursement for ED's, Insurance Disparity and Eating Disorders, Legislation for ED Advocacy and Education, Parents with Eating Disordered Children, Policy & Action, PSA's, Public Health, Public Support for Parity, Support to further ED Research | 1 comment
Some incredible individuals and parent advocates have been hard at work the past two days in Washington working with legislators on Capital Hill for the annual Eating Disorders Coalition Lobby Day to push forth further measures and legislation in the continuation to further progress within treatment, research, prevention and education of eating disorders.
This is vital and necessary work. I for one am so very grateful, since I was not able to attend, for all of these individuals who have committed themselves towards improving the lives of those affected by this devastating illness and the families that are doing so much of this work solo, without much support, treatment resources, and clinicians adequately trained to best help their loves ones.
Thank you EDC and its sponsors, Ms Laura Collins— you are the best!
Life as it is…
April 5, 2008 in Access to ED Care/Treatment, anorexia, Anorexia Nervosa, Behavioral Health, Books, Buddhism, Bulimia, Bulimia Nervosa, Carer Support, Chogyam Trungpa Rinpoche, COE (Compulsive Over-Eating), Constructs of Pyschological Distress, Culture, Disordered Eating Behaviors, Eating Disorder Advocacy, Eating Disorder Treatment, Eating Disorders, Eating Disorders and Mental Health, ED advocacy, ED Hope & Recovery, ED recovery, EDNOS, Emotional Healing, Emotional Journeys, Empowered Families, Empowered Parents, Engaged Families, Family & Culture, Family Based Therapy, Family supported ED treatment, Healing Through Meditation, Health, Health & Wellbeing, Health Care, Mental Health, Neuroscience and Eating Disorders, Parent Activism and Eating Disorders, Parent Advocates, Parent Support, Parent/Family Support and Eating Disorders, Personal, Personal Empowerment, Personal Narratives, Personal Stories, Psychology & Counseling, Research and Recovery, Self-Care, Self-Help Narratives, Spirituality, Symbolic Imagery, Tibetan Buddhism, Tibetan Vajrayana Master, Trungpa tulkus, Writing & Healing | Tags: Activism and Support for Eating Disorders, Anorexia Nervosa, Behavioral Health, Books, Buddhism, Buddhist Psychology, Bulimia Nervosa, Carer Support, Chogyam Trungpa Rinpoche, COE (Compulsive Over-Eating), Eating Disorder Recovery & Hope, Eating Disorder Support, Eating Disorders, ED advocacy, ED Recover, EDNOS, Emotional Healing, Empowered Parents, Engaged Families, Family & Culture, Family Based Threapy and Eatiing Disorders, Health, Health Care, Human Collectives, Humanity, Loving-Kindness, Meditation and Eating Disorders, Meditation Community, meditation practice & healing, Meditation studies and health research, Mental Health, Nalanda Arts Program, Parent advocacy and Eating Disorders, Parent Advocates, Parent Support and Eating Disorders, Parents with Eating Disordered Children, Personal, Personal Stories of Healing, Psychology&Healing, self-help, Shambhala, Spirituality&Healing, Symbolic Imagery and Healing, Therapeutic Healing Modalities for Eating Disorders, Tibetan Vajrayana Master, Trungpa tulkus | 1 comment
Facing the bluntness of reality is the highest form of
sanity and enlightened vision… Devotion proceeds
through various stages of unmasking until we reach
the point of seeing the world directly and simply
without imposing our fabrications… There may
be a sense of being lost or exposed, a sense of vulnerability.
That is simply a sign that ego is losing its grip
on its territory; it is not a threat.
-Chogyam Trungpa Rinpoche
: Tending and Befriending-Let the Cup Overflow :
February 14, 2008 in Adolescent Anorexia Nervosa, anorexia, Anorexia Nervosa, Art Psychotherapy, Artistic Therapy and Healing, Behaviora Strategies, Behavioral Health, Body Acceptance, Bulimia, Bulimia Nervosa, COE (Compulsive Over-Eating), Community Health Education, Culture, Eating Disorder Advocacy, Eating Disorder Treatment, Eating Disorders, ED advocacy, ED Hope & Recovery, ED recovery, EDNOS, Empowered Families, Empowered Parents, Evidence Based Treatment for Eating Disorders, family, Family & Friends Network (PFN), Family Based Therapy, Family supported ED treatment, Family-Based Therapy and Eating Disorders, FBT/Family-Based Therapy, Health, Health & Wellbeing, Health Care, Hope & Recovery for ED's, Improvement of Psychological and Behavioral Treatments, Journal writing and ED, Life, Love, Mental Health, Parent Support, Parent/Family Support and Eating Disorders, Personal Empowerment, Personal Stories, Poetry, Poetry/Literature, Relationships, Society, Sociocultural Factors in Eating Disorders, Thoughts, Valentine's Day, Women & Writing | Tags: Adolescent Eating Disorders and Recovery Stories, Anorexia Nervosa, Behavioral Health/Science, Body Acceptance, Bulima Nervosa, celebrated holiday's/traditions, COE, Culture, Eating Disorder Recovery/Support, Eating Disorders, EDNOS, Empowered Families, Empowerment and ED's, Erase Stigma and Eating Disorders, family, Health, Health and Wellbeing, Health Care, Life, Love, Mental Health, Personal Stories, Poetry, Recovery, Relationships, Self-Acceptance/Love, Sociocultural Factors in Eating Disorders, Thoughts, Valentine's Day, writing | 1 comment
It’s a day filled with LOVE–
Voltaire wrote: Love is a canvas furnished by Nature and embroidered by imagination which is such an eloquent phrase, and so affecting to me having a daughter who is courageously challenging her anorexia- and winning back (embroidering) her true self each day.
Those of us with a child, family member, and/or friend who are suffering with an eating disorder know we have to be both Head & Heart for our loved ones; it’s a duality that few seem to have the discernment and wisdom to forewarn us about on this journey to wholeness and health. Most in the medical community still keep us at arms-length when it comes to offering up the most humane, balanced and adequately researched strategies to implement within supporting our loved ones that emphasize such an expanded “imagination” or creativity that not only empowers the sufferer, but works towards healing the entire family/support network of the sufferer- metaphorically this would require the most sophisticated embroidery needle and elevated imagination that can stitch a warm, comforting Love quilt for anyone to find shelter, solace, comfort and wisdom (and most likely made with fleece).
I also think it’s imperative, absolutely crucial to Love thyself unconditionally, and that dear friends, includes the parents, the extended family members, friends, etc.- your entire collective clan, blood-linked and other surrogate compassionate souls- Tending & Befriending– embracing life as it stands, even making peace with pain, uncertainty and discomfort; all of which we most certainly are no stranger to.
So on this Valentine’s Day I wish for all of you to embrace yourselves, your loved ones with the deepest sense of honor, open-heartedness, self-acceptance and Love–
“You, yourself, as much as anybody in the entire universe, deserve your
love and affection.”
-Buddha
Joyeuse Saint-Valentin!
Err on the Side of Caution…
January 23, 2008 in Access to ED Care/Treatment, anorexia, Anorexia and Depression, Anorexia Nervosa, Antidepressants and Adolescents with ED's, Behavioral Health, Big Pharma, Community Health Education, Consumer Alert, Eating Disorder Advocacy, Eating Disorder Research, Eating Disorders, ED's and Antidepressants, Empowered Families, Evidence Based Treatment for Eating Disorders, Evidence-Based Medicine, Family supported ED treatment, FDA study/clinical trials, Health, Health & Wellbeing, Health Care, Improvement of Psychological and Behavioral Treatments, Mental Health, Mental Health America, meta-analysis, Neuroscience, Neuroscience and Eating Disorders, New England Journal of Medicine, Pharmacology, Psychopharmacology, Publication bias, Research and Recovery, Science, skewed data, SSRI's and ED's | Tags: Anorexia and Depression, Antidepressants and Children/Adolescents, antidepressants and ED's, Behavioral Health, Big Pharma, Consumer Alert, Dr Turner, eating disordered, Eating Disorders, Evidence-Based Medicine, FDA studies/data, Health Care, health&science, Mental Health, MHA, NEJM, Neuroscience, Pharmacology, psychiatry, Psychopharmacology, Publication bias, research, Science, selective reporting of clinical trials, skewed data | Leave a comment
… I always say, especially when it comes to ED’s and medication- specifically anitdepressants and children/adolescents.
It’s a call that I personally feel many clinicians make way too early before steady gains in weight, and full nutrition have been sufficiently addressed, and this takes time. As parents, we see a significant change in mood with increased nutrition, as well as the opposite when our children are not eating enough or metabolizing properly during refeeding and recovery.
Of course this will be an intimately personal and individualized decision, and antidepressants, without a doubt, have helped countless numbers of inividuals from seemingly endless and needless suffering.
And you would want to have a physician who would have all the up to date, accurate, and forthright information in helping you make the best decision possible for your child, but after reading Dr Turner’s published report/study as well as the New England Journal of Medicine’s abstract about “selective reporting and clinical trials”, and “efficacy overstated for antidepressants” I’m convinced it’s vital to continue scrutinizing, as well as reseaching the use of antidepressants within the treatment of ED’s; and question why some clincians seem a tad overzealous to prescribe them.
And as some counterbalance, not completely overlooking how antidepressants have assisted many, CEO David Shern of Mental Health America shared a brief response.
Nuggets Become Boulders for Change
January 16, 2008 in Access to ED Care/Treatment, Accurate Information Campaigns in ED's, Adolescent Eating Behaviors, American Journal of Psychiatry, anorexia, Anorexia Nervosa, Community Health Education, Dr Cynthia Bulik, Eating Disorder Advocacy, Eating Disorder Research, Eating Disorders, ED advocacy, ED Hope & Recovery, Erase Stigma of Anorexia, Evidence Based Treatment for Eating Disorders, Genetic and Environmental causes of ED's, Health, Health Care, Insurance Coverage and ED's, Insurance Disparity, International Journal of Eating Disorders, Mental Health, Neuroscience and Eating Disorders, news, Policy & Action, Questionnaire Studies/Data, Research and Recovery, Science, Sociocultural Factors in Eating Disorders, UNC study | Tags: Access to ED Treatment, biology, Blame-Based Stigma, Dr Cynthia Bulik, Eating Disorder Advocacy, Eating Disorder Research, ED Support, Environmental Factors in ED's, Erase Stigma of Anorexia, Evidence Based Treatment for Eating Disorders, genetic/biological components to ED's, Health Care, Insurance Coverage and ED's, International Journal of Eating Disorders, journalism, media, Mental Health, Michele A. Crisatulli, news, Questionnaire Studies/Data, research, Science, Sociocultural Factors in Eating Disorders, UNC study, UNC.edu, University of North Carolina Eating Disorders Program | Leave a comment
The news of UNC’s study has been bustling about, but it’s worth posting this fine gem of a quote from senior author and director of UNC’s Eating Disorders Program, Dr Cynthia Bulik: “even a nugget of accurate biological information can influence how health care professionals preceive the illness” -and similarly can change the perceptions of others as well.
Nuggets of Information- Boulders of Truth… “POW!”
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