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Two studies that are to take a deeper look into Anorexia Nervosa: The Loughborough Eating disorders Activity theraPy (LEAP) study which looks at the role of extreme exercise in the maintenance of Anorexia Nervosa combining cognitive techniques and behavioural experiments. And the Strong Without Anorexia Nervosa (SWAN) study which aims at determining which three psychological treatments: Cognitive Behavioral Therapy (CBT), Maudsley Cognitive Motivation Therapy, and Supportive Clinical Management have the best outcome for Anorexia Nervosa.
With such a great need for continued research in the area of Eating Disorders, it’s always inspiring to see the dedication and commitment of the individuals and clinicians driving these studies- Kudos!
New Year’s eve is like every other night;
there is no pause in the march of the universe,
no breathless moment of silence among created things that the passage of another twelve months may be noted;
and yet no man has quite the same thoughts this evening that come with the coming of darkness on other nights
~Hamilton Wright Mabie
It’s uplifting to see the continuation and commitment towards treating and caring for those suffering with eating disorders, along with supporting and educating the families involved in their loved ones care.
Harmony Place licensed by the state office of Mental Health is the first residential program in the state of New York to open and work specifically with adolescent girls and boys ages 12-17 providing an additional resource for families vs sending their children out of state:
Harmony Place at St. Joseph’s Villa is the first program in New York State to provide residential treatment exclusively for adolescents struggling with eating disorders. Located on the suburban St. Joseph’s Villa campus in Rochester, N.Y.,
Harmony Place provides treatment and support for up to eight girls and boys, ages 12 to 17, who have had chronic difficulty maintaining recovery through medical inpatient and outpatient programs.
During the 4-6 week stay, a highly structured environment, evidence-based approaches and a caring, specialized staff help partici¬pants regain stability over their illness. Family involvement is a critical component of the program, empowering parents with the skills and understanding needed to help their teen achieve long-term recovery at home.
HARMONY PLACE program features:
-Round-the-clock supervision, with daily medical monitoring
-Safe, structured, therapeutic environment designed for adolescents
-Licensed nurses, board-certified psychiatrists, psychologists, masters-level therapists and dieticians
-Utilizes the Maudsley-Informed approach to re-feeding, on-site emphasizing family therapy, education and hands-on meal preparation
-20 + hours mandatory group therapy and 8+ hours individual & family therapy weekly
-Ability to address co-occurring disorders like chemical dependency, anxiety and depression
-Two-hours academic tutoring per school day
-Three months support following discharge
Post discharge there is a 90day follow up so that patients and families have the proper support they need to help within the transition.
For further information please contact Helena Boersma at St Joseph’s Villa 1.877.520.2667
… where are we?
Objective: The present review addresses the outcome of bulimia nervosa, effect variables, and prognostic factors. Method: A total of 79 study series covering 5,653 patients suffering from bulimia nervosa were analyzed with regard to recovery, improvement, chronicity, crossover to another eating disorder, mortality, and comorbid psychiatric disorders at outcome. Forty-nine studies dealt with prognosis only. Final analyses on prognostic factors were based on 4,639 patients. Results: Joint analyses of data were hampered by a lack of standardized outcome criteria. There were large variations in the outcome parameters across studies. Based on 27 studies with three outcome criteria (recovery, improvement, chronicity), close to 45% of the patients on average showed full recovery of bulimia nervosa, whereas 27% on average improved considerably and nearly 23% on average had a chronic protracted course. Crossover to another eating disorder at the follow-up evaluation in 23 studies amounted to a mean of 22.5%. The crude mortality rate was 0.32%, and other psychiatric disorders at outcome were very common. Among various variables of effect, duration of follow-up had the largest effect size. The data suggest a curvilinear course, with highest recovery rates between 4 and 9 years of follow-up evaluation and reverse peaks for both improvement and chronicity, including rates of crossover to another eating disorder, before 4 years and after 10 years of follow-up evaluation. For most prognostic factors, there was only conflicting evidence. Conclusions: One-quarter of a century of specific research in bulimia nervosa shows that the disorder still has an unsatisfactory outcome in many patients. More refined interventions may contribute to more favorable outcomes in the future.
And all life’s ripening harvest-fields await
The restless sickle of relentless fate.
But I, sweet Soul, rejoice that I was born,
When from the climbing terraces of corn
I watch the golden orioles of Thy morn.
What care I for the world’s desire and pride,
Who know the silver wings that gleam and glide,
The homing pigeons of Thine eventide?
What care I for the world’s loud weariness,
Who dream in twilight granaries
Thou dost bless
With delicate sheaves of mellow silences?
Say, shall I heed dull presages of doom,
Or dread the rumoured loneliness and gloom,
The mute and mythic terror of the tomb?
For my glad heart is drunk and drenched with Thee,
O inmost wind of living ecstasy!
O intimate essence of eternity!
~~ Summer is in full-swing and we are finally escaping for a long overdue respite. Destined long nights, mythical and ancient sites… meditating on cliffs, dusting off the lens and capturing images that provoke and provide aesthetic sustenance. Lingering and contemplative hikes up temple steps that have been etched by devotees feet countless times before– who are we but humble and gracious guests- not the arrogant and time-constrained forceful tourist.
Foraging in sacred forests with gamelons playing in the distance, and dancing deities battling the age-old epic between black&white-good&evil ending with the balance of Life, once again, restored. Then taking what was digested of the day to a lamp lit night to write, write, write. Littering my splattered journal with poetic meanderings that have waited, sometimes it seems far too long, for a time such as this.
Life has certainly been blessed and full of positive changes lately! Our daughter has courageously turned the tables on Anorexia within the past couple of months, and is enjoying a summer filled without “fear“, vibrant, healthy and triumphant in this very moment– we are so extremely proud of her!
Thank you so very much to all of you who are a constant source of human wisdom, compassion and many who have also lent a comforting shoulder to lean on. Along with the ever gracious comrades who work with me tirelessly towards creating our monthly “healing&creative space”– which will return once again late this fall; I really don’t have enough words to do justice in this meager post to give adequate appreciation.
I am deeply grateful for the small patch of ground we continually attempt to uncover to help support those with eating disorders and their families, partners and loved ones. I hope to continue to dig a deeper and wider-reaching network that will eventually have an even greater substantial and purposeful base of resources, along with caring, intelligent and genuine individuals to be of greater service for those who continue to suffer. Patience, time and perserverance– many of us know all too well the meaning of those words, but they truly do remain at the forefront of what long-term recovery entails well after weight-nutritional restoration has been established.
As always, many additional thanks to those who continue to be of support, who listen, read the blog and email, and have allowed me this welcoming space to share our family’s Journey to Recovery– much deep love.
Wishing everyone a relaxing, peaceful and enjoyable summer! See all of you when the leaves begin to crinkle and the crispness of fall begins to fill the air.~~
*Lots&Lots of LOVE to You Today and Everyday! — Mom*Dad*Sis*
When you begin to touch your heart or let your heart be touched, you begin to discover that it’s bottomless, that it doesn’t have any resolution, that this heart is huge, vast, and limitless. You begin to discover how much warmth and gentleness is there, as well as how much space.
I often, as many other parents of children suffering from an eating disorder, find myself envisioning what the future may hold for our daughter when she is older, well beyond the preparatory stages of ED recovery-maintenance, living a full, healthy and ED-free adult life will be like; especially when there may come a time when she decides upon a life-long partnership, marriage and/or family of her own.
Wouldn’t it be comforting and assuring to know that the care your son or daughter is receiving now will also be available for him/her and their partner-spouse when and if the time comes?
Thankfully some forward-thinking clinicians from the UNC Eating Disorders Program are working to provide just such a program, which is at this time addressing Anorexia Nervosa, and can continue to implement these necessary and supportive elements towards long-term health and maintenance for those who have loved ones suffering.
*For further information about registering for the program contact at: UCAN@unc.edu or phone: (919)966.3065
The National Eating Disorders Association-NEDA has issued a Call for Proposals for the September ’09 Conference sagaciously titled: Reshaping Our Future: A Vision for Recovery, Research, Attitudes and Action!
The goals of this conference are:
– Help family members, treatment professionals, health educators and activists to connect and share useful and supportive information that can be transformed into action.
– Familiarize attendees with the latest developments in the field of eating disorders and the implications of this new knowledge for prevention and treatment.
– Reduce the associated stigma of eating disorders and generate awareness about the realities of the illnesses by educating conference attendees, the media and, in turn, the general public, policymakers and opinion leaders.
– Provide a national convening to promote inclusiveness, enthusiasm, energy, optimism and a vision of hope for all conference attendees.
Workshop presenters can have a focus within the areas of family, treatment, special issues, outreach and education. The conference will be held in Minneapolis, Minnesota September 10-12th, and the deadline for conference committee consideration on submissions is Wednesday, March 25th.
For further information contact Director of Programs-Laurie Vanderbloom firstname.lastname@example.org – (206)382.3587.
… but we’ll happily settle.
When he speaks,
The air, a chartered libertine, is still.
Henry V, 1.1