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Extremely tragic news of a mother who “believed there was no hope” for her daughter who was suffering from anorexia and depression, which ironically she herself began battling around the same age- but seemed to be particularly well hidden from the rest of the family’s awareness– ends in the death of a promising young life.

This heartwrenching loss brings to mind many who struggle in silence and isolation, but what few still come to terms with is that this illness can indeed take lives not fully lived, and at any age.

Families, parents, and sufferers affected by disordered eating and self-starvation need and deserve compassion, effective treatment, and ongoing support.  Public awareness, insurance coverage and access to quality care, along with early intervention are still what we all need to keep pushing for so that HOPE becomes reality; and lives can be restored. 

Since our daughter was diagnosed with anorexia almost a year ago this month, I wanted to start to put together, however chaotically at the moment, a journal of our experiences and share them in some manner that can add to the collective of additional perspectives, up to date evidence-based research/data within ED’s; and their effects upon the family, treatment strategies, and improved follow up care towards the goal of full recovery with the least amount of debilitating relaspe, IP/residential and/or hospitalization..  

More importantly, I feel parents can be a locus of change for the medical community, insurance companies, and also a significant support network for eachother.  And that fighting this devastating illness does not have to sentence parents, or the sufferers to a path of isolation, shame, or guilt since many treatment standards, clinicians, and society as a whole still have several outdated and erroneous stereotypes and practices that are impeding continued progress forward.

I do also think there are several reasons, as well as clinicians (though still too few practicing in this field and easily accessible) to keep hope alive and remain optimistic (as hard as that can indeed be at times) that recovery is possible, and that parents should feel empowered to take an active and loving role in their child’s recovery process. 

Shanti-  T.Mere 

End Health Discrimination
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