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Two studies that are to take a deeper look into Anorexia Nervosa: The Loughborough Eating disorders Activity theraPy (LEAP) study which looks at the role of extreme exercise in the maintenance of Anorexia Nervosa combining cognitive techniques and behavioural experiments. And the Strong Without Anorexia Nervosa (SWAN) study which aims at determining which three psychological treatments: Cognitive Behavioral Therapy (CBT), Maudsley Cognitive Motivation Therapy, and Supportive Clinical Management have the best outcome for Anorexia Nervosa.
With such a great need for continued research in the area of Eating Disorders, it’s always inspiring to see the dedication and commitment of the individuals and clinicians driving these studies- Kudos!
Is it really May, already?
Life has been good… definitely busy, but equally good!
The frenzy of prepping for gallery openings along with late nights doing my own work at the studio, holding support groups combined with some Yoga&Massage on the side has been quite the balancing act to say the least.
The end of the school year countdown has begun by our daughter, who has been finding recovery balances, challenges, and triumphs, mingled in with the excitement and plans for what she’ll be wearing and planning for graduation along with pre-summer preparations– Life is good!
And daily I try to make time to reflect on how grateful and blessed I am for my family, dear friends and acquaintances on this journey of Life- merci!
-Percy Bysshe Shelley
There are few individuals who truly rise to a level of integrity, experience, commitment and compassion when it comes to researching and treating eating disorders that I can honestly say are worthy of note, let alone far too few dedicated and wisely seasoned clinicians available for sufferers and families assisting and caring for loved ones to have equal and affordable access to. Dr Daniel le Grange at the University of Chicago is most certainly one of those individuals.
For parents who have younger children or adolescents suffering with an eating disorder you are probably already aware how vital early diagnosis and intervention are to restoring your child’s health. Many families and parents are unfortunately still treated as the “problem” or blamed/shamed into believing that they “caused” their child’s eating disorder, and sometimes, worse yet, doctors don’t even take seriously the early warning signs of eating disordered behaviors as well as weight loss in younger patients and dismiss the parents concerns despite the “highest concentration of most sufferers of Anorexia Nervosa being in the adolescent female population”– time is not on anyone’s side when you delay diagnosis and immediate treatment.
And treatment programs along with many clinicians still leave the family aside and ignored vs being utilized as a vital resource in assisiting and collaborating within helping their child recover, and working with as well as healing the entire family unit. This makes many of us parents quite irate since we know our children best and were the first to have noticed the drastic changes in our child’s behavior, took initiative in researching treatment options/providers, and then continue to take action, resources and advocate for our children while waiting for many in the medical community and insurance industry to finally wake up and begin implementing true evidence-based treatment strategies that work instead of constantly reinventing the wheel, over and over…
Parents, Families/Partners and Caregivers of Children and Adolescents suffering with this illness please take heart, find continued reassurance, and be re inspired by reading Dr le Grange and Dr Loeb’s Early Intervention in Eating Disorders as well as Dr le Grange’s Treatment Model for Eating Disorders in Children & Adolescents :
- Parents are a RESOURCE in helping the adolescent
- Most parents CAN help the adolescent
- Parents have SKILLS to bring to treatment
- Therapist leverages parental skills and relationships to bring about change
- FBT-Family Based Therapy is the only evidence-based treatment shown to be efficacious and cost effective
On the Centre for Excellence in Eating Disorders (CEED) website, where if you are an Australian native they are also providing FBT and eating disorder treatment study for families free for participants, which they did here in the states at the University of Chicago a few years back.
Some day Eating Disorder Treatment will be this good everywhere – until then, keep fighting the good fight and don’t give up!
Kar Men Shreshth Kamandalu Chakra Trishoodlharta
Jagkarta Jagkarta Jag Palankarta
Om hara hara Mahaadevaa
Since our daughter was diagnosed with anorexia almost a year ago this month, I wanted to start to put together, however chaotically at the moment, a journal of our experiences and share them in some manner that can add to the collective of additional perspectives, up to date evidence-based research/data within ED’s; and their effects upon the family, treatment strategies, and improved follow up care towards the goal of full recovery with the least amount of debilitating relaspe, IP/residential and/or hospitalization..
More importantly, I feel parents can be a locus of change for the medical community, insurance companies, and also a significant support network for eachother. And that fighting this devastating illness does not have to sentence parents, or the sufferers to a path of isolation, shame, or guilt since many treatment standards, clinicians, and society as a whole still have several outdated and erroneous stereotypes and practices that are impeding continued progress forward.
I do also think there are several reasons, as well as clinicians (though still too few practicing in this field and easily accessible) to keep hope alive and remain optimistic (as hard as that can indeed be at times) that recovery is possible, and that parents should feel empowered to take an active and loving role in their child’s recovery process.