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And is it true? and is it true?
This most tremendous fate of all,
Seen in a stained-glass window’s hue,
A Baby in an ox’s stall?
The Maker of the stars and sea
Became a Child on earth for me?
And is it true? For if it is,
No loving finger tying strings,
Around those tissued fripperies,
The sweet and silly Christmas things,
Bath salts and inexpensive scent
And hideous tie so kindly meant.
No love that in a family dwells,
No caroling in frosty air,
Nor all the steeple-shaking bells
Can with this single Truth compare,
That God was man in Palestine.
And lives today in Bread and Wine.
-John Betjeman
Sometimes with the Heart
Seldom with the Soul
Scarce once with the Might
Few– love at all.
-Emily Dickinson
Albany’s governor proposed budget eliminates funding for eating disorders in order to keep the focus on obesity and diseases related to obesity.
“In comparison to obesity and diabetes, eating disorders affect relatively few New Yorkers,” said Claudia Hutton, spokeswoman for the state Department of Health.
The governor’s budget will end the $1.7 million annual subsidies to the state’s three eating disorder centers, including $500,000 to Albany Medical Center. The cut would eliminate Albany Med’s entire budget and close the eating disorder program.
“It creates a huge void in the services we’ve been able to develop,” said Dr. Sharon Alger-Mayer, medical director of the Northeast Comprehensive Care Center for Eating Disorders at Albany Med.
The program serves about 2,000 people through outpatient services and 50 people who need to be hospitalized each year at Albany Med for dehydration, malnutrition and organ problems related to eating disorders.
Christie Macfarlane was hospitalized at Albany Med when she was 10 years old. She was transferred to Rochester for more intensive residential services and then returned to Albany where she has received therapy, nutritional advice and medical treatment for five years.
“I don’t know if I would be standing here right now with my 15-year-old daughter thriving if those services hadn’t been there,” said Christie’s mother, Deborah Macfarlane. The Macfarlanes and other families lobbied legislators this week to restore the funding.
“This money is critical,” said Michael Ruslander of Delmar, the father of a teenager who was in dire health because of anorexia. “The treatment my daughter received, as well as the education my wife and I received on how to deal with, communicate and eat with your child who has an eating disorder was invaluable,” Ruslander said. “It’s horrible that you have to go through something like this, but the end result is we came out a better, stronger, more communicative family.” His daughter Molly is now a healthy, successful student at Maria College.
As the state seeks to close a $6.8 billion budget gap, agencies like the DOH are focusing on core issues.
The Department of Health’s mission is safe drinking water, obesity education, childhood vaccinations, investigating disease outbreaks and hospital complaints, Hutton said.
“Those are the kind of things that are the core of public health,” she said. “They are based on what affects most New Yorkers and things that people, frankly, expect somebody to do.”
Looking at the disease statistics, eating disorders trail far behind obesity. Among New Yorkers, 25 percent are obese, nearly 8 percent have diabetes and less than 1 percent suffer from anorexia nervosa.
The eating disorder programs should see *more support from private insurance companies since the state passed “mental health parity” legislation, which requires insurers to pay for mental health services, Hutton said.
* Yea, right! Who’s dreaming now?
Great news to implement MHPAEA!
Happiest Makara Sankranthi!
Our time on this Earth is sacred
and we should celebrate every moment.
-Paulo Coelho
It’s uplifting to see the continuation and commitment towards treating and caring for those suffering with eating disorders, along with supporting and educating the families involved in their loved ones care.
Harmony Place licensed by the state office of Mental Health is the first residential program in the state of New York to open and work specifically with adolescent girls and boys ages 12-17 providing an additional resource for families vs sending their children out of state:
Harmony Place at St. Joseph’s Villa is the first program in New York State to provide residential treatment exclusively for adolescents struggling with eating disorders. Located on the suburban St. Joseph’s Villa campus in Rochester, N.Y.,
Harmony Place provides treatment and support for up to eight girls and boys, ages 12 to 17, who have had chronic difficulty maintaining recovery through medical inpatient and outpatient programs.
During the 4-6 week stay, a highly structured environment, evidence-based approaches and a caring, specialized staff help partici¬pants regain stability over their illness. Family involvement is a critical component of the program, empowering parents with the skills and understanding needed to help their teen achieve long-term recovery at home.
HARMONY PLACE program features:
-Round-the-clock supervision, with daily medical monitoring
-Safe, structured, therapeutic environment designed for adolescents
-Licensed nurses, board-certified psychiatrists, psychologists, masters-level therapists and dieticians
-Utilizes the Maudsley-Informed approach to re-feeding, on-site emphasizing family therapy, education and hands-on meal preparation
-20 + hours mandatory group therapy and 8+ hours individual & family therapy weekly
-Ability to address co-occurring disorders like chemical dependency, anxiety and depression
-Two-hours academic tutoring per school day
-Three months support following discharge
Post discharge there is a 90day follow up so that patients and families have the proper support they need to help within the transition.
For further information please contact Helena Boersma at St Joseph’s Villa 1.877.520.2667
Men say the world is full of fear and hate,
And all life’s ripening harvest-fields await
The restless sickle of relentless fate.
But I, sweet Soul, rejoice that I was born,
When from the climbing terraces of corn
I watch the golden orioles of Thy morn.
What care I for the world’s desire and pride,
Who know the silver wings that gleam and glide,
The homing pigeons of Thine eventide?
What care I for the world’s loud weariness,
Who dream in twilight granaries
Thou dost bless
With delicate sheaves of mellow silences?
Say, shall I heed dull presages of doom,
Or dread the rumoured loneliness and gloom,
The mute and mythic terror of the tomb?
For my glad heart is drunk and drenched with Thee,
O inmost wind of living ecstasy!
O intimate essence of eternity!
-Sarojini Naidu
~~ Summer is in full-swing and we are finally escaping for a long overdue respite. Destined long nights, mythical and ancient sites… meditating on cliffs, dusting off the lens and capturing images that provoke and provide aesthetic sustenance. Lingering and contemplative hikes up temple steps that have been etched by devotees feet countless times before– who are we but humble and gracious guests- not the arrogant and time-constrained forceful tourist.
Foraging in sacred forests with gamelons playing in the distance, and dancing deities battling the age-old epic between black&white-good&evil ending with the balance of Life, once again, restored. Then taking what was digested of the day to a lamp lit night to write, write, write. Littering my splattered journal with poetic meanderings that have waited, sometimes it seems far too long, for a time such as this.
Life has certainly been blessed and full of positive changes lately! Our daughter has courageously turned the tables on Anorexia within the past couple of months, and is enjoying a summer filled without “fear“, vibrant, healthy and triumphant in this very moment– we are so extremely proud of her!
Thank you so very much to all of you who are a constant source of human wisdom, compassion and many who have also lent a comforting shoulder to lean on. Along with the ever gracious comrades who work with me tirelessly towards creating our monthly “healing&creative space”– which will return once again late this fall; I really don’t have enough words to do justice in this meager post to give adequate appreciation.
I am deeply grateful for the small patch of ground we continually attempt to uncover to help support those with eating disorders and their families, partners and loved ones. I hope to continue to dig a deeper and wider-reaching network that will eventually have an even greater substantial and purposeful base of resources, along with caring, intelligent and genuine individuals to be of greater service for those who continue to suffer. Patience, time and perserverance– many of us know all too well the meaning of those words, but they truly do remain at the forefront of what long-term recovery entails well after weight-nutritional restoration has been established.
As always, many additional thanks to those who continue to be of support, who listen, read the blog and email, and have allowed me this welcoming space to share our family’s Journey to Recovery– much deep love.
Wishing everyone a relaxing, peaceful and enjoyable summer! See all of you when the leaves begin to crinkle and the crispness of fall begins to fill the air.~~
When you begin to touch your heart or let your heart be touched, you begin to discover that it’s bottomless, that it doesn’t have any resolution, that this heart is huge, vast, and limitless. You begin to discover how much warmth and gentleness is there, as well as how much space.
-Pema Chodron
* A Very Blessed and Happy Mother’s Day! *
The National Eating Disorders Association-NEDA has issued a Call for Proposals for the September ’09 Conference sagaciously titled: Reshaping Our Future: A Vision for Recovery, Research, Attitudes and Action!
The goals of this conference are:
- Help family members, treatment professionals, health educators and activists to connect and share useful and supportive information that can be transformed into action.
- Familiarize attendees with the latest developments in the field of eating disorders and the implications of this new knowledge for prevention and treatment.
- Reduce the associated stigma of eating disorders and generate awareness about the realities of the illnesses by educating conference attendees, the media and, in turn, the general public, policymakers and opinion leaders.
- Provide a national convening to promote inclusiveness, enthusiasm, energy, optimism and a vision of hope for all conference attendees.
Workshop presenters can have a focus within the areas of family, treatment, special issues, outreach and education. The conference will be held in Minneapolis, Minnesota September 10-12th, and the deadline for conference committee consideration on submissions is Wednesday, March 25th.
For further information contact Director of Programs-Laurie Vanderbloom info@nationaleatingdisorders.org – (206)382.3587.
A wonderful non-profit organization created by Gail Schoenbach For Recovery and Elimination of Eating Disorders – F.R.E.E.D. will be holding a Mother-Daughter Workshop in conjunction with the Eating Disorders Association of New Jersey Saturday, October 18th from 9:30AM-2:30PM at Summit Medical Group.
The workshop’s aim is to “engage women and girls as they explore and challenge their beliefs about themselves, their bodies, and body image”. Freelance journalist, blogger and author, Courtney E. Martin who wrote Perfect Girls, Starving Daughters will be the keynote presenter along with therapist, Suzanne Rubinetti.
F.R.E.E.D.’s mission is to:
- Provide financial support for treating eating disorder (a major hindrance for sufferers and their families in obtaining treatment/recovery resources as well as follow-up care — F.R.E.E.D.’s priority and focus on this issue is to be commended).
- Increase public awareness and provide educational resources.
- Advocate for the acknowledgement and acceptance of Eating Disorders as a serious and urgent disease.
Ms Schoenbach’s own battle with ED and body image issues took place in silence for years until she began the slow process of recovery, and it was during this healing time that she found a passion and drive to create F.R.E.E.D. and her additional adjunct G.R.Schoenbach Foundation which holds annual fund-raising events and campaigns to continue her committed work.
Organizations like these are inspiring, so if you live in the New Jersey area, are a mother with a daughter with/without an eating disorder, go partake in “day of empowerment”, sharing, support and learning– it will do the body&mind good!
-shanti
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